Sunday, 29 July 2012

Not sure we will ever stop sobbing!

We are absolutely stunned by the generosity of friends, family, community and even complete strangers. For once I am actually STILL lost for words. Thankyou just doesnt seem enough. This event was put together by some amazing women who are beautiful inside and out and we will be be always grateful to them.
Having a child with special needs can be a lonely and terrifying journey. This event also showed us that we are not alone and that we have the love and support of some truly inspirational people.
We do not not what will happen to Noah. The more the doctors look into his case the more they believe his combination of conditions is unique to him. The only one in the world with his condition. Whilst this brings us despair as we don't know how to help Noah or how long we will be blessed with him in our lives...it also brings us hope for a miracle.
The money means we will be able to provide things for Noah now, things we may have taken years and years to save for...years we simply may not have.
We look forward to putting in some ramps so we can get in and out the house easier, to making him a sensory room so that on the days he's not able to move out of bed he can still enjoy the things around him. Beyond that..the money means we will be able to spend time with Noah. And time as we all know..is all we can ask for.
The amazing gifts that have been given to us too will make our lives so much easier. To be able to clean the foor and sofa...to be able to relax in a haven at the end of the day...We actually cannot wrap our heads around what we have been given...it's just...mind blowing...but we will be spending the next weeks doing what we can to say thankyou. I somehow think one lifetime won't be enough.
For the women at the core of the event who worked so hard...you are in my heart...you always will be . As I can't see the keyboard for tears I will go...but thankyou xxx
Please add Noah on your Facebook to follow his journeywww.facebook.com/noah.barlow.7 and watch your hard work, love and support change the life of our special little man.
With all that we have and everything that we are...thankyou from the bottom of our hearts xxxx

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